Abstract
This research explores the experience of people living with leprosy at
leprosy settlements in Nigeria. This is a concurrent mixed methods
design whereby questionnaires, focus groups and interviews are conducted
simultaneously. Seven leprosy communities were visited, one from
Nigeria’s six geographical zones and the Federal capital area. This
study included 35 leprosy patients, 21 family members, seven community
leaders, and seven officers in charge of the leprosy settlements. Also
questioned were two heads of organisations involved with leprosy control
in Nigeria. Majority (93.7%) of the respondents have access to
healthcare in the health centres. Majority (95.2%) are interested in
learning self-care practices for skin-related neglected diseases. About
three-fourths (74.6%) receive free healthcare and accent that PLWL are
admitted into the same ward as other patients. Whilst funding is a
growing concern for leprosy control, the data from the interview
confirmed that there is little support from the government but more from
non-governmental organisations and implementing partners in Nigeria for
people living with leprosy. Experts demonstrated that leprosy now ranks
high among neglected diseases. The Nigerian government must work with
partners to ensure the improvement and sustainability of leprosy control
programs.