Expanding BSC Involvement
The collection of neurocognitive and behavioral data in the context of
clinical trials that are modifying treatment to minimize neurotoxicity
continues to be paramount. The BSC will continue to work toward
balancing the efficiency of computerized assessments with the more
clinically relevant but time-intensive traditional,
psychologist-administered measures of cognitive functioning. We will
begin to address the exclusion of some marginalized populations from
participation in cognitive outcomes research related to the lack of
availability of testing materials in languages other than English,
Spanish, and French. Relevant to cognitive outcomes, efforts are
underway to examine the impact of anesthesia exposure over time,
particularly in survivors of ALL. We will also be examining the impact
of sensory deficits (i.e., vision/ hearing impairment) resulting from
cancer or its treatment on cognitive outcomes and QOL.
There is a substantial breadth of expertise in the BSC that extends
beyond neurocognitive functioning. Feasible interventions to address
psychosocial and mental health late effects of treatment are lacking and
desperately needed to promote QOL among long-term survivors of childhood
cancer.11–16 There is particular interest in
dissemination and implementation science, including promoting the use of
and adherence to evidence-based interventions. Studies are needed to
examine how children with cancer perform at school – both academically
and socially/emotionally – and what kinds of supports are required
after treatment (e.g., 504/IEP, special education). Future research must
focus on gathering data related to social attainment and its barriers,
particularly among AYAs, including rates of graduation, employment, and
independent living. Finally, there is interest in standardizing methods
of distress screening and developing brief, feasible methods of reducing
distress among patients of all ages and their families.