Expanding BSC Involvement
The collection of neurocognitive and behavioral data in the context of clinical trials that are modifying treatment to minimize neurotoxicity continues to be paramount. The BSC will continue to work toward balancing the efficiency of computerized assessments with the more clinically relevant but time-intensive traditional, psychologist-administered measures of cognitive functioning. We will begin to address the exclusion of some marginalized populations from participation in cognitive outcomes research related to the lack of availability of testing materials in languages other than English, Spanish, and French. Relevant to cognitive outcomes, efforts are underway to examine the impact of anesthesia exposure over time, particularly in survivors of ALL. We will also be examining the impact of sensory deficits (i.e., vision/ hearing impairment) resulting from cancer or its treatment on cognitive outcomes and QOL.
There is a substantial breadth of expertise in the BSC that extends beyond neurocognitive functioning. Feasible interventions to address psychosocial and mental health late effects of treatment are lacking and desperately needed to promote QOL among long-term survivors of childhood cancer.11–16 There is particular interest in dissemination and implementation science, including promoting the use of and adherence to evidence-based interventions. Studies are needed to examine how children with cancer perform at school – both academically and socially/emotionally – and what kinds of supports are required after treatment (e.g., 504/IEP, special education). Future research must focus on gathering data related to social attainment and its barriers, particularly among AYAs, including rates of graduation, employment, and independent living. Finally, there is interest in standardizing methods of distress screening and developing brief, feasible methods of reducing distress among patients of all ages and their families.