References
1. Siegel DA, Richardson LC, Henley SJ, et al. Pediatric cancer
mortality and survival in the United States, 2001‐2016. Cancer .
2020;126(19):4379-4389. doi:10.1002/cncr.33080
2. Hunger SP, Mullighan CG. Acute Lymphoblastic Leukemia in Children.
Longo DL, ed. N Engl J Med . 2015;373(16):1541-1552.
doi:10.1056/NEJMra1400972
3. Cusinato M, Calvo V, Bisogno G, et al. Attachment orientations and
psychological adjustment of parents of children with cancer: A
matched-group comparison. Journal of Psychosocial Oncology .
2017;35(6):726-740. doi:10.1080/07347332.2017.1335365
4. Brinkman TM, Recklitis CJ, Michel G, Grootenhuis MA, Klosky JL.
Psychological Symptoms, Social Outcomes, Socioeconomic Attainment, and
Health Behaviors Among Survivors of Childhood Cancer: Current State of
the Literature. J Clin Oncol . 2018;36(21):2190-2197.
doi:10.1200/JCO.2017.76.5552
5. Kazak AE, Noll RB. The integration of psychology in pediatric
oncology research and practice: Collaboration to improve care and
outcomes for children and families. American Psychologist .
2015;70(2):146-158. doi:10.1037/a0035695
6. Maruff P, Thomas E, Cysique L, et al. Validity of the CogState Brief
Battery: Relationship to Standardized Tests and Sensitivity to Cognitive
Impairment in Mild Traumatic Brain Injury, Schizophrenia, and AIDS
Dementia Complex. Archives of Clinical Neuropsychology .
2009;24(2):165-178. doi:10.1093/arclin/acp010
7. Institute of Medicine (US) Committee on Standards for Developing
Trustworthy Clinical Practice Guidelines. Clinical Practice
Guidelines We Can Trust . (Graham R, Mancher M, Miller Wolman D,
Greenfield S, Steinberg E, eds.). National Academies Press (US); 2011.
Accessed May 24, 2023. http://www.ncbi.nlm.nih.gov/books/NBK209539/
8. Robinson PD, Oberoi S, Tomlinson D, et al. Management of fatigue in
children and adolescents with cancer and in paediatric recipients of
haemopoietic stem-cell transplants: a clinical practice guideline.Lancet Child Adolesc Health . 2018;2(5):371-378.
doi:10.1016/S2352-4642(18)30059-2
9. Guidelines on the Management of Chronic Pain in Children .
World Health Organization; 2020. Accessed May 24, 2023.
http://www.ncbi.nlm.nih.gov/books/NBK566553/
10. Seelisch J, Sung L, Kelly MJ, et al. Identifying clinical practice
guidelines for the supportive care of children with cancer: A report
from the Children’s Oncology Group. Pediatr Blood Cancer .
2019;66(1):e27471. doi:10.1002/pbc.27471
11. Schulte F, Kunin-Batson AS, Olson-Bullis BA, et al. Social
attainment in survivors of pediatric central nervous system tumors: a
systematic review and meta-analysis from the Children’s Oncology Group.J Cancer Surviv . 2019;13(6):921-931.
doi:10.1007/s11764-019-00808-3
12. Devine KA, Christen S, Mulder RL, et al. Recommendations for the
surveillance of education and employment outcomes in survivors of
childhood, adolescent, and young adult cancer: A report from the
International Late Effects of Childhood Cancer Guideline Harmonization
Group. Cancer . 2022;128(13):2405-2419. doi:10.1002/cncr.34215
13. Gilleland Marchak J, Devine KA, Hudson MM, et al. Systematic Review
of Educational Supports of Pediatric Cancer Survivors: Current
Approaches and Future Directions. J Clin Oncol .
2021;39(16):1813-1823. doi:10.1200/JCO.20.02471
14. Marchak JG, Christen S, Mulder RL, et al. Recommendations for the
surveillance of mental health problems in childhood, adolescent, and
young adult cancer survivors: a report from the International Late
Effects of Childhood Cancer Guideline Harmonization Group. Lancet
Oncol . 2022;23(4):e184-e196. doi:10.1016/S1470-2045(21)00750-6
15. Christen S, Roser K, Mulder RL, et al. Recommendations for the
surveillance of cancer-related fatigue in childhood, adolescent, and
young adult cancer survivors: a report from the International Late
Effects of Childhood Cancer Guideline Harmonization Group. J
Cancer Surviv . 2020;14(6):923-938. doi:10.1007/s11764-020-00904-9
16. Schulte FSM, Patton M, Alberts NM, et al. Pain in long-term
survivors of childhood cancer: A systematic review of the current state
of knowledge and a call to action from the Children’s Oncology Group.Cancer . 2021;127(1):35-44. doi:10.1002/cncr.33289
17. Close AG, Dreyzin A, Miller KD, Seynnaeve BKN, Rapkin LB. Adolescent
and young adult oncology-past, present, and future. CA Cancer J
Clin . 2019;69(6):485-496. doi:10.3322/caac.21585
18. Roth ME, Parsons SK, Ganz PA, et al. Inclusion of a core
patient-reported outcomes battery in adolescent and young adult cancer
clinical trials. J Natl Cancer Inst . 2023;115(1):21-28.
doi:10.1093/jnci/djac166
19. Cherven B, Sampson A, Bober SL, et al. Sexual health among
adolescent and young adult cancer survivors: A scoping review from the
Children’s Oncology Group Adolescent and Young Adult Oncology Discipline
Committee. CA Cancer J Clin . 2021;71(3):250-263.
doi:10.3322/caac.21655
20. Frederick NN, Bingen K, Bober SL, et al. Pediatric oncology
clinician communication about sexual health with adolescents and young
adults: A report from the children’s oncology group. Cancer Med .
2021;10(15):5110-5119. doi:10.1002/cam4.4077
21. Noone A, Howlander N, Krapcho M, et al. SEER Cancer Statistics
Review, 1975-2015. SEER. Published 2018. Accessed May 24, 2023.
https://seer.cancer.gov/archive/csr/1975_2015/index.html
22. Pui CH, Evans WE. A 50-year journey to cure childhood acute
lymphoblastic leukemia. Semin Hematol . 2013;50(3):185-196.
doi:10.1053/j.seminhematol.2013.06.007
23. van der Plas E, Modi AJ, Li CK, Krull KR, Cheung YT. Cognitive
Impairment in Survivors of Pediatric Acute Lymphoblastic Leukemia
Treated With Chemotherapy Only. J Clin Oncol .
2021;39(16):1705-1717. doi:10.1200/JCO.20.02322
24. Johnson SB, Riis JL, Noble KG. State of the Art Review: Poverty and
the Developing Brain. Pediatrics . 2016;137(4):e20153075.
doi:10.1542/peds.2015-3075
25. Hasle H. Pattern of malignant disorders in individuals with Down’s
syndrome. Lancet Oncol . 2001;2(7):429-436.
doi:10.1016/S1470-2045(00)00435-6
26. Hasle H, Clemmensen IH, Mikkelsen M. Risks of leukaemia and solid
tumours in individuals with Down’s syndrome. Lancet .
2000;355(9199):165-169. doi:10.1016/S0140-6736(99)05264-2
27. Athale UH, Puligandla M, Stevenson KE, et al. Outcome of children
and adolescents with Down syndrome treated on Dana-Farber Cancer
Institute Acute Lymphoblastic Leukemia Consortium protocols 00-001 and
05-001. Pediatr Blood Cancer . 2018;65(10):e27256.
doi:10.1002/pbc.27256
28. Buitenkamp TD, Izraeli S, Zimmermann M, et al. Acute lymphoblastic
leukemia in children with Down syndrome: a retrospective analysis from
the Ponte di Legno study group. Blood . 2014;123(1):70-77.
doi:10.1182/blood-2013-06-509463
29. Kutny MA, Alonzo TA, Abla O, et al. Assessment of Arsenic Trioxide
and All-trans Retinoic Acid for the Treatment of Pediatric Acute
Promyelocytic Leukemia: A Report From the Children’s Oncology Group
AAML1331 Trial. JAMA Oncol . 2022;8(1):79.
doi:10.1001/jamaoncol.2021.5206
30. Tolins M, Ruchirawat M, Landrigan P. The Developmental Neurotoxicity
of Arsenic: Cognitive and Behavioral Consequences of Early Life
Exposure. Annals of Global Health . 2014;80(4):303-314.
doi:10.1016/j.aogh.2014.09.005
31. Vaidya N, Holla B, Heron J, et al. Neurocognitive Analysis of
Low-level Arsenic Exposure and Executive Function Mediated by Brain
Anomalies Among Children, Adolescents, and Young Adults in India.JAMA Netw Open . 2023;6(5):e2312810.
doi:10.1001/jamanetworkopen.2023.12810
32. Knipp S, Gattermann N, Schapira M, Käferstein H, Germing U. Arsenic
in the cerebrospinal fluid of a patient receiving arsenic trioxide for
relapsed acute promyelocytic leukemia with CNS involvement.Leukemia Research . 2007;31(11):1585-1587.
doi:10.1016/j.leukres.2007.03.007
33. Au WY, Tam S, Fong BM, Kwong YL. Determinants of cerebrospinal fluid
arsenic concentration in patients with acute promyelocytic leukemia on
oral arsenic trioxide therapy. Blood . 2008;112(9):3587-3590.
doi:10.1182/blood-2008-06-161000
34. Mulhern RK, Merchant TE, Gajjar A, Reddick WE, Kun LE. Late
neurocognitive sequelae in survivors of brain tumours in childhood.Lancet Oncol . 2004;5(7):399-408.
doi:10.1016/S1470-2045(04)01507-4
35. Pellegrini JW, Lipton SA. Delayed administration of memantine
prevents N-methyl-D-aspartate receptor-mediated neurotoxicity. Ann
Neurol . 1993;33(4):403-407. doi:10.1002/ana.410330414
36. Liu C, Lin N, Wu B, Qiu Y. Neuroprotective effect of memantine
combined with topiramate in hypoxic-ischemic brain injury. Brain
Res . 2009;1282:173-182. doi:10.1016/j.brainres.2009.05.071
37. Brown PD, Pugh S, Laack NN, et al. Memantine for the prevention of
cognitive dysfunction in patients receiving whole-brain radiotherapy: a
randomized, double-blind, placebo-controlled trial. Neuro Oncol .
2013;15(10):1429-1437. doi:10.1093/neuonc/not114
38. Santacroce SJ, Kneipp SM. A Conceptual Model of Financial Toxicity
in Pediatric Oncology. J Pediatr Oncol Nurs . 2019;36(1):6-16.
doi:10.1177/1043454218810137
39. Tran YH, Coven SL, Park S, Mendonca EA. Social determinants of
health and pediatric cancer survival: A systematic review. Pediatr
Blood Cancer . 2022;69(5):e29546. doi:10.1002/pbc.29546
40. Pelletier W, Bona K. Assessment of Financial Burden as a Standard of
Care in Pediatric Oncology. Pediatr Blood Cancer . 2015;62 Suppl
5:S619-631. doi:10.1002/pbc.25714
41. Aristizabal P, Winestone LE, Umaretiya P, Bona K. Disparities in
Pediatric Oncology: The 21st Century Opportunity to Improve Outcomes for
Children and Adolescents With Cancer. Am Soc Clin Oncol Educ
Book . 2021;41:e315-e326. doi:10.1200/EDBK_320499
42. Scheurer ME, Lupo PJ, Schüz J, et al. An overview of disparities in
childhood cancer: Report on the Inaugural Symposium on Childhood Cancer
Health Disparities, Houston, Texas, 2016. Pediatric Hematology and
Oncology . 2018;35(2):95-110. doi:10.1080/08880018.2018.1464088
43. Gupta S, Wilejto M, Pole JD, Guttmann A, Sung L. Low socioeconomic
status is associated with worse survival in children with cancer: a
systematic review. PLoS One . 2014;9(2):e89482.
doi:10.1371/journal.pone.0089482
44. Bhatia S. Disparities in cancer outcomes: lessons learned from
children with cancer. Pediatr Blood Cancer . 2011;56(6):994-1002.
doi:10.1002/pbc.23078
45. Gupta S, Teachey DT, Devidas M, et al. Racial, Ethnic, and
Socioeconomic Factors Result in Disparities in Outcome Among Children
with Acute Lymphoblastic Leukemia Not Fully Attenuated By Disease
Prognosticators: A Children’s Oncology Group (COG) Study. Blood .
2021;138(Supplement 1):211-213. doi:10.1182/blood-2021-147386
46. Newman H, Lee S, Pölönen P, et al. The Influence of Genetic Ancestry
on Disease Biology in Pediatric T-Cell Acute Lymphoblastic Leukemia.Blood . 2022;140(Supplement 1):3458-3460.
doi:10.1182/blood-2022-159159
47. Kelada L, Wakefield CE, Vetsch J, et al. Financial toxicity of
childhood cancer and changes to parents’ employment after treatment
completion. Pediatr Blood Cancer . 2020;67(7):e28345.
doi:10.1002/pbc.28345
48. Umaretiya PJ, Koch VB, Stevenson KE, et al. Household material
hardship and parental distress in a multicenter clinical trial for
pediatric acute lymphoblastic leukemia. JCO .
2021;39(15_suppl):10025-10025. doi:10.1200/JCO.2021.39.15_suppl.10025
49. Ilowite MF, Al-Sayegh H, Ma C, et al. The Relationship Between
Household Income and Patient-Reported Symptom Distress and Quality of
Life in Children With Advanced Cancer: A Report From the PediQUEST
Study. Cancer . 2018;124(19):3934-3941. doi:10.1002/cncr.31668
50. Bona K, Keating NL. Addressing Social Determinants of Health: Now Is
the Time. JNCI: Journal of the National Cancer Institute .
2022;114(12):1561-1563. doi:10.1093/jnci/djac137
51. Aziz-Bose R, Zheng DJ, Umaretiya PJ, et al. Feasibility of oncology
clinical trial-embedded evaluation of social determinants of health.Pediatr Blood Cancer . 2022;69(11):e29933. doi:10.1002/pbc.29933
52. Beauchemin M, Santacroce SJ, Bona K, et al. Rationale and design of
Children’s Oncology Group (COG) study ACCL20N1CD: financial distress
during treatment of acute lymphoblastic leukemia in the United States.BMC Health Services Research . 2022;22(1):832.
doi:10.1186/s12913-022-08201-0